There are nearly 100 Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) in the US and Territories. These Centers perform a variety of direct services for children and youth with disabilities, families, professionals, and other organizations that support them. Some of the activities include: Working with families of infants, toddlers, children, and youth with disabilities, birth to 26 Helping parents participate effectively in their children’s education and development Partnering with professionals and policy makers to improve outcomes for all children with disabilities
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN. We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities. The Federation believes that individual differences in people are a natural part of life, and that disabilities provide children and adults with unique perspectives, insights and abilities which contribute to the overall well-being of society. The Federation values children as the hope for the evolving improvement of humankind, and places great value on the family as a caring protector of children’s vulnerability, as well as a catalyst for their healthy growth and development. The Federation places a tremendous value on parents because of the contributions they make as the leaders of families toward supporting the health, education, and development of their children at home and in society. The Federation promotes the active and informed participation of parents of children with disabilities in shaping, implementing, and evaluating public policy that affects them. The Federation believes in the power of parents helping parents and has infused a proven model of peer support throughout all its work. Most Federation staff members are parents or family members of children with disabilities and people with disabilities.
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Families with shared experiences are uniquely qualified to help each other, offering support, guidance and encouragement. Because of this, all of our programs and services are family centered and based on the concept of parent-to-parent support. Whether you’re just beginning your journey or have a question along the way, we offer a variety of services and resources that can help.
To provide leadership in the area of children’s mental health through education, awareness, support, and advocacy for families of children and youth with emotional, behavioral, mental and/or substance use disorders. Our Vision Our vision is to address the unique needs of children and youth with emotional, behavioral and mental disorders and their families that they may lead productive lives.
Protection & Advocacy for People with Disabilities
Under annual priorities set by a volunteer Board of Directors, P&A investigates reports of abuse and neglect and advocates for disability rights in areas such as health care, education, employment and housing. P&A serves people of all ages and disabilities. P&A does not charge for its services. P&A does not discriminate on the basis of disability, race, color, creed, national origin, ethnicity, ancestry, citizenship, age, religion, sex or sexual orientation, veteran status or any other class protected by law in the provision of its programs or services. Pete Cantrell is P&A’s designated coordinator for Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Act.
The mission of the SC Respite Coalition is to expand quality respite opportunities in South Carolina throughout the lifespan for South Carolina families who have a member with special needs. The Coalition’s goals are to: Educate the general public and specific groups about the need for respite care. Develop strategies to provide and improve respite services for families. Provide support for families and providers through a coordinated information resources.
Charleston CAN is a network of self advocates, service providers, families, caregivers, and professionals committed to making Charleston a better place to live and work for individuals with disabilities. We believe that through partnerships, cooperation, and local advocacy, Charleston can be a more equitable and inclusive community to live.